I was first told I had CVID in November 2011, and got my actual diagnosis February 2012. As I've read 100 times over in others stories, I too have had a rash of bad doctors that I'm still trying to figure out. I started SubQ Hizentra in March. It's been a bumpy ride. There's good days and bad days, but the good slowly start to outweigh the bad. And when the bad happen, I just let them. I used to fight them and make them worse. Now I just admit defeat and go with it. Sometimes I push through it and come out the other side a raging ball of emotional goo that my poor husband has to pick up and spoon feed kind words and rational thoughts to. So I try to just accept, rest, relax, and try again tomorrow. That's me. For now at least... Tomorrows always another day to do something new!
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Member Since: October 4, 2012 (6 years)